I just want to make a note of any changes we've seen since Ari's seizure. On the bright side, *knock wood* Ari's eating has improved. I don't know how long this will last, but it's been about two days so far, and she's acting like she kinda loves food... even dinner. Great side effect of short-term starvation (NPO).
On the flip side, Ari seems much weaker. Just in the muscles. Her sitting is poorer (she's toppling; used to be a thing of the past), and her standing is basically nonexistent. Her legs buckle as soon as they have any weight on them at all. Usually, with a stroke, the muscles get hypertonic (tight), not hypotonic (loose). She is definitely hypotonic right now (which I much prefer to see). I don't really know what's causing her hypotonia. Some possibilities include the increase of phenobarb dose, the after-effects of the seizure, and the fact that I've been stretching and massaging her like crazy since the seizure to prevent hypertonia (about 5-30 minutes at every diaper change). I'm hoping that it's the stretching/massaging that's making her limber and floppy, but the only way to find out for sure is to stop stretching her and I'm not about to do that.
Sunday, January 31, 2010
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God Bless you for doing all this work for your little one! I have twins myself and I know how much work twins can be...and you have one that needs more help than his brother and another little one! You are doing an amazing job, I just wanted to tell you this. Incredible work...I hope that you know this and proud of yourself. Your love for your children is amazing...as it should be...
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