Thursday, July 15, 2010

Swimming Lessons

We got the kids involved in swimming lessons this month, and it has been wonderful. They have all improved so much, and all three truly look foward to it every day.

Gabe starts asking me if he can go to swimming lessons from the minute he wakes up in the morning. When I inform him that we have to wait until tonight (lessons start at 6 PM), he tells me "I don't want to. I want to go to swimming lessons!" Gabe has gone from being fearful of the water and clinging to us in the water to jumping in and going under to retrieve rings off the bottom of the pool. He does bobs, monkey crawls along the wall, and even can "swim" with some support a few feet. He really admires his teacher, Mr. Steven, who is great with him.

I ask Ari questions about her lessons every night before bed when we have our "talks", and she tells me that she loves swimming lessons and loves playing in the water, but that going under makes her scared (a conversation of many yes/no questions on my end; nodding, head shaking, facial expressions, and sounds on Ari's end). But she doesn't fool me, because she puts her face right back in the water the very next day and comes up grinning from ear to ear -- it just needs to be on her terms. Ari was always comfortable in the water, but she really looks like a swimmer out there. She does stop kicking and scooping from time to time or forget to close her mouth and hold her breath, but I think she'll get the hang of it in a couple summers. She really impresses her teacher, Miss Tory.

Isabella used to be very anxious in the water and even resisted getting in our pool at home because she was afraid of the depth (not that we ever let her go). She wouldn't let us tow her foward or hold her on her back either. Now, she is comfortable on her tummy and her back in the water, is blowing bubbles, and even goes under water while holding her breath (huge breakthrough! Daddy gets the credit.). I had my doubts about how much we could actually accomplish in just eight sessions of lessons, but I was blown away with how much progress the kids made with the help of our teachers.

Gabe practices pushing off and "swimming" back to the wall with support. Gabe practices "monkey crawling" along the wall. The girls love to play "banana rock" and get tossed in the air. Both girls are feeling comfortable on their backs now -- a major improvement since before lessons. Of all my three children, Ari is the most comfortable in the water. She kicks and scoops with her left hand while having her entire face under water. She loves swimming lessons. It is really her time to shine.Isabella learned to kick and blow bubbles in the water.
Gabe loves practicing bobs. Well, in principle yes, he loves bobs... in practice, they give him a little anxiety. But, he'll do anything to try and impress Mr. Steven, so he's a really good sport. Isabella learned how to hold her breath and pinch her nose before she goes under water.
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The First Dentist Appointment

I've put off the inevitable first dentist appointment as long as possible, while still staying within my limits as a responsible parent. Knowing what I know about my kids love for teeth brushing (not really), Ari's affinity towards rubber gloved strangers (nuh uh), her inclination to bite (this one's true), not to mention my own uncomfortable experiences in the dentist's chair, has led me to politely ignore my pediatrician's urging to get the kids their first dental exam at one year old. One year old she said! So, at three and a half years, my twins had their first formal teeth cleaning and dental exam. To my credit, Isabella got hers before she turned two. :) I was surprised at how well it went. Gabe loved the dentist so much that he cried when we had to leave. Ari tolerated everything a whole lot better than expected, although she wasn't pleased with the X-rays. Bella gave what the hygenists referred to as an "age appropriate response" and cried pretty much the whole time the focus was on her. But she got over that pretty quickly too. We had a clean bill of dental health: no cavities and big props for great brushing -- yay for me! (Oh, the things that excite me in my old age).


The waiting room at Sweet Tooth Pediatric Dentistry was a mini wonderland for my three. There were two different Disney movies playing, bean bags to sit on, wall toys everywhere (which is awesome because Ari can reach these while sitting in her wheelchair), video games, and a little train that ran around the whole room.Gabe makes a buddy wherever he goes.Race car video game. Notice the look of awe. Also notice his new and first ever "real" haircut (given by neither me nor a relative). I didn't blog about it and I forgot my camera, and here I digress, but he did amazing at his hair cut. He kept smiling at and flirting with his stylist. :) When she'd tell him how cute he looked, he kept replying, "Thanks. I know," with a little smirk on his face. He didn't complain once the entire time. I got my hair cut right after him, and he would repeatedly tell me, "Mom, you look so beautiful!" Awww.Gabe was such a good sport about the entire appointment, from x-rays to the cleaning and the exam. It was almost as though he was trying to be mature and show off to the hygenists and dentist or something, because I didn't have to direct him at all.His only request was that I let him hold his blue balloon the whole time.Ari did really well. She wasn't thrilled about it, as evidenced by the anxious look on her face and clenched fists, but she definitely held herself together. I was very proud of her.



Sorry to say that I didn't get any pictures of Isabella's exam, cleaning, or x-rays, because I was so busy restraining her the whole time. But she was sweet as pie after she got to open a brand new Eyeore toothbrush, which she refers to as "my teeth!".

Wednesday, July 7, 2010

4th of July



We were planning on heading up to Holbrook for the 4th, because it's one of the best days of the year to spend up there. But after Ari had her seizure and we faced the realization that we don't have any protection up there, because there is hardly anyone in town that is authorized to administer Versed (the only med that stops her seizures), we realized that until we figure out a way to arm ourselves with something that works (Klonopin & Valium don't), we best stay close to a major metropolitan area. Huge bummer.

So, we went to Tempe Town Lake to watch the fireworks. And they were beautiful! The weather was a perfect 93 degrees too. Aunt Marci joined us, and the kids had a great, late night. Gabe, Ari, & Bella rolled down the hill and Gabe chased around an older boy whom he friended until the show started. Then all anyone wanted to do was cuddle (Gabe: "Lay down Mommy! It's cuddle time!") and name the types of fireworks. Each of us had our own type of firework. On the way home, Bella and Ari crashed immediately, but Gabe stayed up long enough to tell me "Mommy & Daddy... thank you for taking me to the fireworks and the train ride!". I said that in an earlier post. But it was so sweet, it bears repeating.

Happy birthday America! We love you!


Rolling down the hill until the sprinklers came on :-0

happy girl munchin on grapes


Hauling butt to get on the light rail before the other 150,000 people do!

Sunday, July 4, 2010

Milestones Update

I'm about a month or two overdue for a milestones post. With everything that has been going on, I'm having a hard time jogging my memory for what's newsworthy, even though I often find myself thinking 'I need to remember to post about this' throughout my day-to-day. But alas, here I am.

I'll see if I can make this any less daunting by putting it in a list instead of narrative form:

Isabella:








  • Starting to potty train (as of my last day of summer school). She's asking to go potty frequently. She has gone poo four times and pee five times in the potty since Friday. She's wearing a pull-up. Yay Bells!



  • She's talking a ton and using short sentences. She has a pretty expansive vocabulary thanks to her brother, Gabe. She also loves to talk back and sass me, thanks again to Gabe. Her favorite phrases right now are "No! I no want to!" and "I do it!". Miracle of miracles, she can also be a little sweetheart and say the most suprising things without any prompting. The other day she told me, "Kiss please Mommy. I love you soooo much!



  • She can put on and take off her own shoes (correct feet and all). She's very coordinated -- much more so than my Gabe ever was at this age (he has just learned how to put on his shoes). Bella can even take her bracelets off with her feet! She's quite the monkey :).



  • She's still a little apprehensive about water but, in shallow water, she loves to crawl around on her hands and blow bubbles. She starts swimming lessons today!



  • She can jump and climb and stand on one foot. She's has a pretty good throwing arm too. This girl is tough as nails. She falls down often when she's attempting great feats (climbing over someone on a patio chair, attempting to run in slip-on Crocs, and the like), but she doesn't miss a beat and she gets right back up and hits the ground running again.



  • She still has a love affair with purses and shoes, but honestly, can we ever expect that to change?



  • Bella has learned how to open her Myolelectric hand on her own! She's still not really picking anything up with it yet, but I think it's only a matter of time.



  • She has grown attached to two lovies: bear & blankie (just like Gabe). Hers are both pink and satin. :)



  • She's singing the alphabet, identifying letters, and counting to ten (sometimes higher).



  • Bella is still little miss popular. Bella makes everyone feel special and like they are part of the family with her warm, friendly attitude and her comfort with new faces. People seem to always comment on her independent, free spirit and her wise-beyond-her-years confidence. She's been getting this comment since she was a newborn, so I think this is a quality that just may stick around.


Ariana:



  • After excelling in potty training for several weeks (days with no accidents at all!), Ari has hit a minor bump in the road after her latest hospital stay. After two days of being bed-ridden and out of her routine, she has fallen back into old habits with toileting, and she's needing some extra encouragement to get back up on the horse. So, I figured, that's what M&M's are for! We're working our way back on track.



  • Ari's gross motor skills seem to be a more or less the same place that they were a couple months ago. We saw some definite improvements resulting from Stem Cell Therapy in this area, but they have not continued to augment at the same trajectory that they were within the first two months after treatment. In other words, we saw the most drastic results shortly after treatment, and it's somewhat tapered off since then. Right now, Ari sits very well for short periods (or until she wants to move), she still commando crawls to move, she can kneel for very short periods, and stand with substantial support.



  • Ari's fine motor skills have seen some gains, in my view. She can reach farther, pick up smaller objects in a shorter period of time, manipulate objects with her left hand pretty well, and she's even started incorporating her right hand as a helper hand when she wants to adjust her grip of an object or to support herself.


  • Ari is getting pretty vocal about her wants lately. I guess this is pretty standard 3-year-old stuff, but she's kind of whiney right now. She's understandably frustrated with the fact that she can't move around on her own. Unfortunately, she is still just using her talker to play right now. She says things on it -- we respond. She says more things. Occasionally, she'll press some button that really registers with her, and she gets an "aha" moment. For instance, we'll be eating dinner, and she'll press "all done". Then she'll look at us, wide-eyed, and nodd, as if to say "yeah, what she said!".



  • Ari has been making slow but real progress on her power chair. Lately, it's been too bloody hot to practice very often, but she's getting the hang of it. She can approximate distance better, meaning that she'll creep up closer and closer to me until she's right to me. She's understanding directionality better, although she does get frustrated and tire out easily (I think this has a lot to do with the heat right now). I'm confident that Ari will get the hang of her power, and that it will just take a few more hours of practice than we initially planned on.


  • Ari my water lover! Just like last year, she is so confident in the pool! I love it. She will put her whole face under the water and blow bubbles! I'm talking total immersion, not just her lips.



  • Ari's two favorite things are puppies and babies! They light up her world.

Gabriel:





  • This is a wonderful age on Gabe. He is turning into an awesome big brother (most of the time) and just great company overall. He is such a helper to me these days, and he'll often say to me "How can I help you Mommy?" and be willing to lend a hand in whatever ways he can. He is an extra set of eyes and ears for me, looking out for his sisters, and he's recently been especially compassionate with the girls. Whenever we take Gabe anywhere, he always thanks us without any prompting, "Thank you for the fireworks and the train ride Mommy & Daddy. It was really fun" or "Thanks for the dinner at the restaurant Mom". The changes Gabe has made in his attitude and behavior this month have really made me think that things are starting to look up and this kid just might turn out okay afterall :).



  • Right now, Gabe is really into playing games on Daddy's phone. He has cracked the lock code on the phone (I don't even know how to work the Droid!) and knows how to operate the phone to get right to his favorite apps, which right now are the 'basketball game', the 'Star Wars' light sabre app, and his stories.



  • Gabe has turned into my picky eater. It takes him For.ever. to finish his dinner, and he insists on picking everything apart. As in, totally deconstrubted. He doesn't want to eat anything that has a spec of green or red on it either.



  • Gabe is getting swimming lessons, starting yesterday! I'm really excited, because so far, he's enjoyed his first day. He has also been jumping off the high wall into the pool and venturing deeper into the water (up to his shoulders). He LOVES the water playground at Mesquite Groves, and he begs me to take him everyday. Major progress from last year... the year of the fear when Gabe wouldn't go near that playground or consider jumping off the side wall.



  • Gabe can pull up his own pants and put on his own shoes! Yippee! Next, fine/gross motor milestone to tackle is wiping! Not really looking foward to that at all. Oh, and it would be great if Gabe learned to pedal his trike sometime before kindergarten...



  • He's still very interested in reading and putting letter sounds together, but I haven't been working with him so much (bad mommy!) because of my summer school. He's been making progress without me, mostly with his sight word recognition.



  • Gabe no longer wants to be the bad guy in his movies! Right now, he's into pretending he's Mowgli from 'The Jungle Book'.

Chewy:

  • It appears that Chewy is very much enjoying his new home. He longs after Bonnie Dai (the female Wheaten) but she is still not too sure if it's love yet. They take walks side by side every day and they hunt mice together. He has made a true friend in the husky Kayo, who he gets to play rough with. His new owners have said that he is "a perfect fit for their family", which makes me really happy. We miss him though.



{Chewy with a little Westie friend visiting for the weekend}

Thursday, July 1, 2010

Not the Kind of Post I Wanted to Write



I was truly looking forward to doing a really good update, because I've been so behind on everything not school related. Unfortunately, I'm forced to punch out this lame excuse for a post (that I will need to finish later, because I should be studying for my Ethics final exam, which is tomorrow).

Ari had a seizure on Tuesday afternoon. Long story short(ened), Ari was up all night on Monday crying hysterically for seemingly no reason. We thought she was nauseous, because she did end up throwing up once when I tried to give her some children's Ibuprofin. Jake and I kept worrying that she was going to have a seizure (don't ask me why... instinct perhaps?), so we let her sleep in bed with us for the first time in her life. I took her to the doctor on Tuesday for her coincidentally already scheduled and long overdue well-check appointment. She was running a slight fever of about 101.5 (that's low grade for Ari), and Dr. Sudha diagnosed her with a double ear infection and gave us an Rx for some oral antibiotics. Anyway, I gave her a sucker and then she went quiet. Too quiet. She had been crying all day, so I attributed it to her utter fatigue. I gave her her first dose of ammoxicillin and plopped her on the couch to watch her movie. Then, I stepped into the office to print off my recipe for dinner, and while in there, heard an all-too-familiar sound of staggered breathing. I screamed for Jake to call 911, and then ran into the family room, hoping desperately not to see what I knew I would: Ari seizing madly and having thrown up all over herself.

The paramedics got there as I was packing Ari's hospital bag, and Jake was there with them. They gave Ari Valium instead of Versed, which never works for Ari. They had no way of knowing that, but it still messed us up in the long run. In the ambulance, they finally got the Versed into her, and she stopped seizing. Her seizure lasted about 12 minutes. This is long. They made us go to Gilbert Mercy Hospital, because she was not stable when we left our house and they wanted to get her somewhere quickly to stop the seizure. Gilbert was, all in all, not a horrible experience, but we requested a transfer as soon as Ari was stabilized, which took a while to do. After we arrived, she started seizing again. This time, it was very slight and was only detectable by a slight twitching of the eyes. Thank goodness Marci was there to notice it. So, they naturally had no choice but to give Ari more sedation. This time, it was Atavan. Sound like too many drugs for such a little girl? That's because it was. Ari needed to be intubated and put on a ventilator to breathe for her, because her respiration would be so severely depressed from the sedatives. This was horrible, albiet necessary. She got a CT scan of her head, because we were concerned that her head bonk on Saturday night could be to blame for her seizure. Thank goodness, the CT didn't show anything new or acute, and we were absolved of that load of lifetime guilt. She got a chest XRay, and as it turns out, a double ear infection and seizure wasn't the half of it. The poor girl also had pneumonia. After that, Ari was flown via helicopter to Banner Desert PICU.

It was about 10 pm when she was registered in the PICU. Still on a vent and a drip to keep her sedated. I forgot the names of the drugs from here on out. Can you believe it? Evidence that I'm really losing my mind! My aim: get Ari off the vent, extubated, drinking, eating, sleeping, antibiotics to get her healthy again, and to GET OUT. The doctors' aim: make one baby step decision in that direction every 12 hour shift. Basically, no more than one move could be made per round, and they were literally absent between rounds unless I stalked them down. So, a mommy's gottado what a mommy's gottado. I was pretty pushy, but a (relatively) healthy Ari was discharged on Wednesday night at 8 PM. She probably would've been in there until Friday if I had allowed us to creep along at the snail's pace the doctors preferred. In any case, she's home now, sleeping soundly in her bed. Under the watchful ear/eye of two baby monitors.

I am an exhausted, anxious, bitter, fearful, angry, helpless mess. I am shaking my fist in the air as I type this. I held it together pretty well the entire time we were in the hospital... I mean, considering I had to witness my baby as she went from a violently convulsing puppet to a limp, unconscious body on life support; to a tortured, gagging, coughing, vomiting little girl waking up from unconsciousness at 2 AM to find a tube in her throat, two IV's in her arms, wires all over her body, and restraints tying her arms and legs to the bed. Considering all that, I guess you could say I stayed pretty level-headed. But, don't let that fool you. Because now, I'm definitely not that. And I don't want to pretend to be anymore either. I am PISSED OFF. Don't worry, I'm not pissed at you or the doctors or nurses or anyone in particular. Although I'd love to be. It would be so much easier and less confictive if I could blame someone other than GOD for what's happening to Ari. I find no solice in the message that this is happening for a reason or anything attempting to be reassuring right now. And I apologize if this is a disappointment or if I'm warranting the status of a fallen hero or something. But I really don't want to be an inspiration right now. This isn't that blog. Not today. Nope. I'm the girl that's issuing a warning: God, if you take Ari from me or if you hurt her much more than this, I will not survive it nor will I want to. No, in fact, if you take her from me, we're not going to be friends anymore. So don't do it!