Tuesday, August 31, 2010

Stem Cells Round 2 & Feather Play (by Elisa)

I am so pleased to inform that we are planning a second stem cell trip for a booster dose of 2 million stem cells (Ari got 3 million cells on the first round) for this coming October. Courtesy in majority part to the $6,000 in generous donations that were remaining after the first round of stem cells, in part to Ariana’s $2,850 in Aflac ICU insurance reimbursement, and in part to the winnings of the Grand Prize Mix 96.9 Hot Mom Contest (thank you to all those who voted for me). If we can manage to fundraise the difference, we may be able to get her an extra 1 million stem cells (same dose as last round). We feel so very fortunate to be able to do this for Ari at this time! Stay tuned.

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These are just a few of my images that I snapped right after the shoot with Jenny. The kids were getting hungry for lunch, but I had to make sure that I captured at least some of the magic of the morning with them.

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Monday, August 30, 2010

Jenny Schomaker Photo Shoot

Our lovely pediatrician, Dr. Sudha, hired her most trusted professional photographer to take pictures of our children, along with several other children with special needs, for large canvases to hang in her office. The shoot was so incredibly fun, complete with slashed open feather pillows that snowed thick downy blankets onto my bed to the utter delight of my littles. Here is the sweet slideshow that the ever-so-talented Jenny made for us:



Check out her website, www.Jschomaker.com to book a session, and be sure to mention my name when you do. :)

Thursday, August 26, 2010

Bedtime Ritual

One of my favorite, and perhaps truly the favorite time of day for me is my children’s bedtime.  And I don’t mean the time at which the lights go out and they close their sleepy eyes for the night (although that moment has it’s good points too).  I mean the hour preceding that time, when it’s just us,  just our family huddled in one room, almost always Ariana’s room, and we don’t let any of the outside world in.  There is no doing of chores or reading of news or checking of email or answering of phones.  It’s all shut out, if but for this time of day.  And we relish in each other’s company and the thrill of close quarters like we do when we stay in a hotel on vacation. 

It may seem at a hurried pace, because there always is so much to do, but we’re really taking our sweet time.  The wee babies three each take turns going potty, getting washed up in the tub by Daddy, getting towel dried and dressed in fresh jammies by Mommy, hair brushed, teeth brushed --  sure.  But amidst all this, we play, and not in a structured way the way you think to play with blocks or a board game or something like that.  We play, letting our hearts be the guide.  We give tickles and wrap the babes up in towel “burritos” and “make pizzas” on each other’s tummies.  We all cuddle on the bed and have dance contests to the folk or hip hop or classic rock tunes that Daddy’s Droid phone pipes out, which is the soundtrack to our bedtime ritual.  Bella dresses up in Ari’s shoes and hats, Gabe solicits us for a sword fight with Mickey Mouse (or imaginary) swords, Ari dumps out her basket of books and flips through their pages one by one.  It’s a chaos of love.  And when we’re done, and it’s way past the predetermined bedtime we had in our minds, we read stories and say our prayers in a circle on the carpet.  Ari gets tucked in by Mommy, Gabe gets tucked in by Daddy, and we both take turns tucking Bella in. 

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Isabella loves getting her teeth brushed.  Well, I guess it would be more accurate to say that she loves toothpaste, and this is about the only time she get get it without having to be sneaky about it.  But make no mistake, leave a toothbrush unattended on the counter and she’ll eat the toothpaste off of it in the time it takes to blink your eyes.  And if ever can’t be found, you can bet she’ll be huddled in the back of our walk-in closet, tube in hand, eating the minty paste by the squeeze.

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{Ari playing with Mommy’s toes}

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{Goodnight moons}

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Tuesday, August 17, 2010

Latest and Greatest

My apologies that it’s been a while since I’ve posted an update, especially a milestones update, and I have had many inquiries on Ari’s progress during this time (as well as my other children of course).  This August 15, marked the six month anniversary post-Stem Cell Therapy.  And as I’ve said before, this time pretty much delineates the last of the progress that we can reasonably attribute to her therapy.  In other words, whatever gains she experienced from the stem cells will be evident by this point.  And while I’ve been updating on her progress pretty consistently, there are still a few developments that she’s realized in the past two months that I have yet to mention, but that we are very excited about.
 
Ari has gotten stronger.  I might not have noticed it myself, because I am around her all the time, if it weren’t for the fact that so many others have repeatedly brought it to my attention.  The others of whom I speak include her therapists, her teachers, friends at church, and people who only see her intermittently.  While she does have “off days” and “off moments” when she sort of falls into a dreamy daze and lets her whole body relax and hang loose, she has been holding herself in a sitting position much straighter, catching her balance more, initiating pulling to a kneel, commando crawling farther distances and quicker, and tiring less overall.  We are so proud of this little lady.
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{with Aunt Marci}
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Another major development for Ari that I’ve only briefly mentioned is her exceptional ability to hold her breath under water, consistently and for unusually long periods of time – we’re talking like 30 seconds at a time here people.  While my other two tots have perfect control over their bodies, they are still apprehensive at best (Gabe), downright panicky and worst (Bella) about immersing their heads and faces fully under the water.  I think their reactions are still pretty much the norm for their age.  It’s Ari’s reaction that I just can’t get over!  I swear, the girl is a mermaid.  Between dunking her face (she initiates each time she goes under) and laughing hysterically, she’ll only come up for one quick two second gasp of air before going back under.  She amazes me every day.
     
 
So, we have been working on getting Ari to learn how to go from prone (tummy) to sitting for oh so very long, and she hasn’t been able to get her body to cooperate with her at all.  Years we tried and made few if any slight improvements.  I had all but stopped thinking about it except when I was working with her during the day.  Then one day last week, I went upstairs to get her up from her nap, and there she was, sitting up rail straight, cross legged on her bed, with a huge grin spanning her face.  I had to check myself as I questioned if someone could have snuck in and propped her up!  But no, it was her.  It was my little girl all on her own.  And I wasn’t the only one in the room beaming with pride; Ari was clapping for herself, which she does when she knows it’s really a big deal.  Two days later, she did it again.  Just an everyday miracle.
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My boy, Gabe, also has grown up quite a bit this summer.  Not only is he now taking himself potty entirely on his own, which is a leap of independence that I can surely appreciate (he was potty trained before but needed assistance with undressing/dressing, aiming, and hand washing… no longer the case!), but he has also gained independence in the swimming pool as well.  This child was never crazy about the water like his twin.  He clung to us fiercely in the pool and wasn’t interested in taking any risks, which was both a reassurance and a frustration for us.  Floaties were out of the question, because he would just cry and throw his feet up and his head back, freaking out and losing control at the same time.  This month, after having put him through swimming lessons, we tried the floaties again, and low and behold… he swims!  Mind you, not without the assistance of his puffy little vest, but he swims doggy paddle laps back and forth across the length of the pool, with a self-satisfied smirk on his face, and he never wants to get out.  Except, that is, when he feels like jumping in all by himself!
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Little Bells is not quite the water baby at this juncture in her life.  While she demands to wear her “swimming jacket” and to go to “swimming lessons”, she still wants to cling tightly to Mommy and Daddy and remain in an upright, nose-breathing-air position while in the water.  That’s okay.  Isabella is so full of wonder and surprise and pure amusement.  I being around her.  She is a ray of sunshine, always ready with a joke or a giggle or a game.  And even when she’s ornery, it tickles me through and through.
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{just us}
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